We are happy to share new resources and information that continue to become available to our community. We are dedicated to publishing them regularly on our blog, so you will always have a place to learn the latest and feel supported.
We talked with Ellie Dalsheimer, a neonatal intensive care unit nurse, about the role NICU nurses in the care of families facing a prenatal diagnosis of a life-limiting condition.
We sat down with the International Institute for the Advancement of Medicine (IIAM) about their Neonatal Donor Program and the role they play in supporting families who are considering or have chosen neonatal organ and tissue donation as a part of their child’s legacy.
We talked with Laura Ricketts, a birth and bereavement doula, about the importance of bereavement doulas, both for families and as contributors to a care team.
We talked with Elaine Cavazos, a Licensed Clinic Social Worker, about the importance of social workers, both for families and as contributors to a care team.
To help you fully understand the term life-limiting in the context of prenatal diagnoses, we are providing a deeper understanding into what life-limiting means and why it is the standard terminology.
We explore the four cornerstones of fully informed choices: non-directive presentation of options, full understanding of options and outcomes, access to comprehensive and reliable resources, and philosophy of life.
We explore how perinatal palliative care can change the way families navigate the diagnosis, experience their pregnancy, and transition into life after loss.
We’ll cover the topics of: preconception appointments, early and regular prenatal care, what to expect, prenatal vitamins, prenatal testing, and subsequent prenatal care after prior pregnancy loss.
To help you navigate the process of pregnancy continuation and prenatal care, we have created this helpful guide to preparing for appointments following diagnosis.
Assigning blame is a common and normal response in situations that feel out of your control. Here, we explore strategies for supportive communication during this unimaginable time.
As the experts and care providers, parents look to you for knowledge, medical care, and support. The language you use to communicate the diagnosis shapes how heard, supported, and validated a parent feels.
What you and your significant other are experiencing is not an easy process, so it makes sense that you might experience some breakdowns in communication and, as a result, some conflicts.