A Place for Support
When you’re facing a prenatal diagnosis of a life-limiting condition, the decision to carry a pregnancy to term is often accompanied by a range of questions and emotions. We are a non-profit organization dedicated to helping you gather the support, tools, and resources necessary to navigate the months ahead.
Resources for Parents, Families, and Medical Professionals
SIMPLIFYING MEDICAL TERMS
The Diagnoses Glossary
We understand the delicate balance between wanting answers and needing sensitivity. Our glossary of diagnoses and terminology provides clear information while respecting your emotions.
COMMUNICATING YOUR WISHES
A Personalized Birth Plan
Our online tool gently guides you through creating a personalized birth plan that’s best for you and your baby. Giving a copy of the plan to your care team helps ensure your wishes and needs are met.
LEARNING THE LATEST
We want to make it easy to find the most current resources and information. Regularly posted articles educate and empower our entire community in a supportive and non-directive way.
Engaging the Medical Community
Providers across the country distribute our free educational materials in their medical centers and healthcare facilities. We’ve sent out:
Your Donation Makes a Difference
Women and families facing a prenatal diagnosis deserve to be fully informed. Your gift helps us develop and share much-needed pregnancy continuation resources, tools, and support.
The importance of communication between doctor and patient.
The pregnancy journey is unique for those facing prenatal diagnosis of a life-limiting condition. To care well for these families, it can help to think through each step from their perspective.
More than any other of your patients, families facing a prenatal diagnosis of a life-limiting condition need consistency during their prenatal care.