The Role of a Neonatal Intensive Care Unit Nurse, and How They Can Help

Carrying To Term was fortunate enough to have the chance to talk with Ellie Dalsheimer, a neonatal intensive care unit nurse, about the role NICU nurses in the care of families facing a prenatal diagnosis of a life-limiting condition. Not every family facing such a diagnosis will experience the NICU, but for the families who do, NICU nurses play a pivotal role in supporting, empowering, and informing these parents.

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Neonatal Donation FAQ with IIAM

Carrying To Term was fortunate enough to have the chance to talk with the International Institute for the Advancement of Medicine (IIAM) about their Neonatal Donor Program and the role they play in supporting families who are considering or have chosen neonatal organ and tissue donation as a part of their child’s legacy.

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The Role of a Bereavement Doula, and How They Can Help

Carrying To Term was fortunate enough to have the chance to talk with Laura Ricketts, a birth and bereavement doula, about the importance of bereavement doulas, both for families and as contributors to a care team. After navigating personal experiences with loss, Laura turned her pain into purpose and began to serve other grieving families as a doula.

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The Role of a Licensed Clinical Social Worker, and How They Can Help

Carrying To Term was fortunate enough to have the chance to talk with Elaine Cavazos, a Licensed Clinic Social Worker, about the importance of social workers, both for families and as contributors to a care team. Elaine has dedicated her career to serving families who are navigating the worst experiences of their life, and her insight, compassion, and dedication shine through her words.

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Life-Limiting: Understanding the Terminology

When navigating a prenatal diagnosis, whether you are the parent, the provider, or the network of support, clarity is critical for feeling fully informed, equipped, and supported. Carrying To Term believes that clear, compassionate, and easy to understand language has the power to shape how parents process a diagnosis, make fully informed choices, and cope following diagnosis, throughout pregnancy, and in life after loss.

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Informed Choice

Following a prenatal diagnosis of a life-limiting condition, the decision to carry a pregnancy to term is often accompanied by a range of questions and emotions. The way the diagnosis, pregnancy continuation and pregnancy termination options, and a plan of care are communicated has the power to sway a patient’s decisions and their ability to navigate and grieve their circumstances.

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Prenatal Care

Prenatal care, also referred to as antenatal care, is the health care that a pregnant woman receives from a professional like an obstetrician, midwife, or other specialist such as a perinatologist. Prenatal care includes lifestyle advice such as diet and exercise, weight monitoring, testing, and examinations to prevent and detect problems that affect the health and well-being of mother and baby.

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Four Years After My Losses: A Personal Message From Sarah Garvey

This week, the blog is going to be more personal than usual. While each post I write comes from the deeply personal place that shares in your pain as parents, or the place that has been a friend or family member supporting a grieving parent, or the place that has been a patient and cared deeply for her medical professionals, I do not often talk about my own story on this blog. This week, I cannot imagine sharing anything with you other than my own words about my own losses and what this experience is like for my family now.

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How to Navigate a Prenatal Diagnosis in a Work Environment

Returning to work after receiving a prenatal diagnosis of a life-limiting condition can be an overwhelming and daunting experience. Though navigating a prenatal diagnosis and pregnancy continuation in a work environment is not the most comfortable experience, I encourage you to lean into the discomfort, anxiety, and unknown that may accompany informing your employer and coworkers about the diagnosis and prognosis.

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How To Tell Family And Friends About A Prenatal Diagnosis

After receiving a prenatal diagnosis of a life-limiting condition, you will be navigating information, decisions, grief, and the inevitable experience of telling your family and friends about the diagnosis and prognosis. The idea of sharing this news and devastating reality with your network of family and friends may seem daunting, and you may not feel fully emotionally prepared for the process.

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Children's Grief

The grief children experience following the death of a loved one is often overlooked. There is a common misconception that children cannot process death or that they need to be protected from the realities of death and the grief that follows. The desire to protect children from this experience actually isolates them, and they become disenfranchised or overlooked grievers.

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Agency and Voice: How To Advocate well

Agency is the ability or capacity a person has to act within a given environment or set of circumstances. That ability or capacity is completely unique and personal to each individual, and every person has control over their own agency. However, it is important to recognize that a person's perception of their own agency is often determined or affected by the environment or set of circumstances they are experiencing.

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