Blog Archive Hero


We are happy to share new resources and information that continue to become available to our community. We are dedicated to publishing them regularly on our blog, so you will always have a place to learn the latest and feel supported.

Skeletal Dysplasia

Bethany and Roman’s Story

“We quickly learned, that as parents, our job is to protect and love our daughter, and we knew we were going to fight for her and her precious life. We were hopeful. We were hopeful that Nora would survive.”

Read More

Amanda D.’s Story

“This experience has made us better people. We sacrificed our emotions and time to put this little person first. We learned true, selfless love. The beauty in the suffering was what brought us together and made us closer as a family.”

Read More

Jim and Emily’s Story

“She opened up a world of love that was never known before. We know we will be reunited with her again, and, for now, she is held so tightly in our hearts.”

Read More