Blog Archive Hero


We are happy to share new resources and information that continue to become available to our community. We are dedicated to publishing them regularly on our blog, so you will always have a place to learn the latest and feel supported.

Alobar Holoprosencephaly

Sara’s Story

“Tears flow freely for our daughter, and we miss her more than words can express. Our arms ache to hold Claire again, but our hearts are full of the love we have for her and each other. Claire’s life was short, but incredibly meaningful.”

Read More