IT CAN BE HARD TO FIND RELIABLE INFORMATION ABOUT LIFE-LIMITING CONDITIONS AND THEIR EFFECTS ON MOTHERS AND FAMILIES. SCIENTIFIC FINDINGS ON CONGENITAL ANOMALIES—AND HOW TO BEST OFFER SUPPORT TO PARENTS WHO RECEIVE A PRENATAL DIAGNOSIS—HAVE ONLY RECENTLY BEGUN TO BE DOCUMENTED. WE INTERVIEWED PERINATAL EXPERTS AND PULLED TOGETHER RESOURCES TO HELP YOU GATHER ANSWERS AS YOU NAVIGATE THE JOURNEY AHEAD.
Advocacy and Bereavement Services
Your own personal advocate. Whether you are a parent, family or friend of the parents, or a medical professional caring for someone with a life-limiting condition, your needs during this time are unique. Our director Sarah Garvey provides compassionate, individualized support rooted in personal experience and education.
Make an Online Birth Plan
Your birth plan outlines your wishes for you and your baby throughout the birth and in the moments that follow. While some of the questions may be hard, addressing them before your baby’s birth ensures your needs are met. Start when you’re ready, then save, download, or print your plan to share with your care team.
Gathering the Help You Need
There are many people available to help you coordinate and prepare for your birth experience. We’ve put together this guide to help you understand the roles and responsibilities of different caregivers.
A Few Things You Might Want to Ask
We’ve put together a list of questions you can take to your next appointment to help gather the information you need.
Understanding Your Journey
We’ve put together this series of videos dedicated to sharing words of advice from physicians, social workers, and parents who have been there.