For Friends and Family: Supporting Parents During the Holiday Season

For parents facing a prenatal diagnosis of a life-limiting condition and for parents grieving the loss of their baby, the holiday season can be complicated. Parents may feel a heightened sense of grief as they balance the holidays and the realities of their impending loss or the complicated emotions that come with grieving a baby.

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Four Years After My Losses: A Personal Message From Sarah Garvey

This week, the blog is going to be more personal than usual. While each post I write comes from the deeply personal place that shares in your pain as parents, or the place that has been a friend or family member supporting a grieving parent, or the place that has been a patient and cared deeply for her medical professionals, I do not often talk about my own story on this blog. This week, I cannot imagine sharing anything with you other than my own words about my own losses and what this experience is like for my family now.

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How to Navigate a Prenatal Diagnosis in a Work Environment

Returning to work after receiving a prenatal diagnosis of a life-limiting condition can be an overwhelming and daunting experience. Though navigating a prenatal diagnosis and pregnancy continuation in a work environment is not the most comfortable experience, I encourage you to lean into the discomfort, anxiety, and unknown that may accompany informing your employer and coworkers about the diagnosis and prognosis.

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How To Tell Family And Friends About A Prenatal Diagnosis

After receiving a prenatal diagnosis of a life-limiting condition, you will be navigating information, decisions, grief, and the inevitable experience of telling your family and friends about the diagnosis and prognosis. The idea of sharing this news and devastating reality with your network of family and friends may seem daunting, and you may not feel fully emotionally prepared for the process.

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Prenatal Counseling: Supporting Parents Following a Prenatal Diagnosis

According to a systematic review of prenatal counseling for congenital anomalies, parents who receive prenatal counseling from a knowledgeable medical professional following a prenatal diagnosis exhibit less anxiety, increased recall of the diagnosis, and a better understanding of the prognosis. 

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Grandparents Day: Acknowledging Grieving Grandparents

Grandparents feel the impact of a prenatal diagnosis of a life-limiting condition intensely. Grandparents face a unique and profound grief that starts the moment they learn of their grandchild's diagnosis, and like the parents, they grieve for the baby and the life he or she will never have. However, grandparents also have the compounded grief that comes with watching their own child suffer an unimaginable loss.

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Perinatal Mental Health And the Carrying To Term process

Parents who receive a prenatal diagnosis of a life-limiting condition are at an increased risk for perinatal mental health complications. The anticipatory grief and anxiety experienced following the diagnosis and throughout pregnancy continuation are risk factors for mood disorders in the antepartum and postpartum periods for both mothers and fathers.

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Children's Grief

The grief children experience following the death of a loved one is often overlooked. There is a common misconception that children cannot process death or that they need to be protected from the realities of death and the grief that follows. The desire to protect children from this experience actually isolates them, and they become disenfranchised or overlooked grievers.

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Agency and Voice: How To Advocate well

Agency is the ability or capacity a person has to act within a given environment or set of circumstances. That ability or capacity is completely unique and personal to each individual, and every person has control over their own agency. However, it is important to recognize that a person's perception of their own agency is often determined or affected by the environment or set of circumstances they are experiencing.

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Pregnancy After Loss: A Friend and Relative's Guide

Friends and relatives, you play an important role in the lives of grieving parents. You helped lessen a parent's isolation by being listening ears and shoulders to cry on. You have brought meals, run errands, helped with children, and navigated life's logistics with your grieving friend or relative. These acts of support have been invaluable during their pregnancy and loss.

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Pregnancy After Loss: A Parent's Guide

After experiencing a prenatal diagnosis of a life-limiting condition and the loss of your precious baby, the idea of another pregnancy can bring a mix of emotions. Whether you are just beginning to consider expanding your family or you are currently walking through a pregnancy, we are here to help you navigate the complexities and unique needs of pregnancy after loss.

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Pregnancy After Loss: A Doctor's Guide

For families who have experienced the loss of a child to a prenatal diagnosis of a life-limiting condition, pregnancy can never be the same. As different as this new pregnancy may be, the two pregnancies are intertwined. The experience they had before of receiving a diagnosis, carrying that pregnancy to term, delivering their child, and then saying goodbye to that baby affects everything.

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